Who we are

Big Steps of Hope is the name of an independent fundraising event, being organised in support of the Motor Neurone Disease Association (reg charity number 294354).

Our website address is: https://www.bigstepsofhope.co.uk.

What personal data we collect and why we collect it


When visitors leave comments on the site we collect the data shown in the comments form, and also the visitor’s IP address and browser user agent string to help spam detection.

An anonymised string created from your email address (also called a hash) may be provided to the Gravatar service to see if you are using it. The Gravatar service privacy policy is available here: https://automattic.com/privacy/. After approval of your comment, your profile picture is visible to the public in the context of your comment.

We collect information when you give it to us directly:
You may give us your information in order to sign up for one of our events.


If you upload images to the website, you should avoid uploading images with embedded location data (EXIF GPS) included. Visitors to the website can download and extract any location data from images on the website.

Contact forms

If you use the Contact Form on our website, you may opt-in to saving your name and e-mail address in cookies. These are for your convience so you do not have to fill in your details again when you submit another contact request.


If you leave a comment on our site you may opt-in to saving your name, email address and website in cookies. These are for your convenience so that you do not have to fill in your details again when you leave another comment.

If you have an account and you log in to this site, we will set a temporary cookie to determine if your browser accepts cookies. This cookie contains no personal data and is discarded when you close your browser.

When you log in, we will also set up several cookies to save your login information and your screen display choices. Login cookies last for two days, and screen options cookies last for a year. If you select “Remember Me”, your login will persist for two weeks. If you log out of your account, the login cookies will be removed.

Embedded content from other websites

Articles on this site may include embedded content (e.g. videos, images, articles, etc.). Embedded content from other websites behaves in the exact same way as if the visitor has visited the other website.

These websites may collect data about you, use cookies, embed additional third-party tracking, and monitor your interaction with that embedded content, including tracking your interaction with the embedded content if you have an account and are logged in to that website.

Who we share your data with

When you sign up for one of our events, you will be asked whether you would like us to share your information with the Motor Neurone Disease Assocation so they can contact you for the purpose of fundraising, future events and requests for support. This is entirely optional. You can view their privacy policy here: www.mndassociation.org/privacy-policy

We will only ever share your data in other circumstances if we have your informed consent. We will never share, sell or swap your details with any third parties for the purpose of their own marketing or monetisation of your data.

How long we retain your data

If you leave a comment, the comment and its metadata are retained indefinitely. This is so we can recognise and approve any follow-up comments automatically instead of holding them in a moderation queue.

For users that register on our website (if any), we also store the personal information they provide in their user profile. All users can see, edit, or delete their personal information at any time (except they cannot change their username). Website administrators can also see and edit that information.

What rights you have over your data

If you have an account on this site, or have left comments, you can request to receive an exported file of the personal data we hold about you, including any data you have provided to us. You can also request that we erase any personal data we hold about you. This does not include any data we are obliged to keep for administrative, legal, or security purposes.

Where we send your data

Visitor comments may be checked through an automated spam detection service.

Additional information

How we protect your data

We ensure that there are appropriate technical controls in place to protect your personal details. For example, our online forms are encrypted and our network is protected.

Our website is secured by an SSL certificate that ensures any personal information and financial details shared during our registration checkout process is encrypted.

We regularly review who has access to information that we hold to ensure that your information is only accessible by appropriately trained staff.

We may disclose your personal information where we are under a duty to disclose it in order to comply with any legal obligation (for example to government bodies and law enforcement agencies), or in order to enforce or apply our rights (including in relation to our website or other application terms and condiitions), or to protect Big Steps of Hope, for example in cases of suspected fraud or defamation.

Keeping your information up to date

We really appreciate it if you let us know if your contact details change.

Keeping your personal information

We keep your personal information only for as long as is necessary to fulfil the purposes for which we collected it, including for satisfying any legal, tax, accountancy, reporting and our legitimate interest requirements. For marketing purposes this may be until you withdraw your consent or object to further contact. However, we will retain your data on a surpression list to ensure that we do not continue to contact you.

We may anonymise your personal information (so that it can no longer be associated with you) for research or statistical purposes, in which case we may use this information indefinitely without further notice to you.

In some circumstances, you can ask us to delete your personal information.

Changes to this privacy policy

We may update this privacy policy at any time, so please do check it from time to time. If significant changes in the way we treat personal information are made to this policy, we will notify you by a primary e-mail address or place a prominent notice on our website.

Last updated 24/02/2019